June 15, 2013
— Open Blogger
“The parents really went the extra mile.”
Look, I just want to say up front:
I completely understand Janet and Francis Murnaghan's campaign to get their daughter, Sarah, a lung transplant at any cost.
They are parents. Their primary function is the continued existence of their daughter, and I doubt many parents in their situation and with their means would do less.
But, I can't help but think we have just turned the transplant business into a popularity contest.
The rules that existed prior to the Murnaghan's media blitz and lawsuit worked, more often than not, to make the process as objective as possible.
Yes, there are several good examples of people who, through fame or fortune, managed to get to the front of their line. But by and large, the rules worked as they should have, and the lesson from those breaks in the rules should have been: Fix the system to make it even more objective.
Instead, despite the promises that this little girl was merely being given a chance at the adult wait list, it turns out that indeed, she was not only placed with high priority on the adult list, but was also on the pediatric wait list. She was double-dipping, as it were, and ultimately, she got the next available lungs.
Despite the "false choice" accusations aimed at those people on the dispassionate side of the debate who claimed giving this girl a pass on the rules meant giving someone else a death sentence, indeed, it appears quite likely that someone must die who otherwise would have had a chance at life, perhaps a chance better than that of a juvenile with cystic fibrosis and a pair of sliced-to-fit lungs.
As of Wednesday, 217 people were waiting for lungs... in SarahÂ’s geographical area, Region 2, according to data from the Organ Procurement and Transplantation Network, or OPTN... Nationwide, nearly 1,700 people are waiting for lungs...
The Murnaghan's thanked the organ donor's family:
"We are elated this day has come, but we also know our good news is another family's tragedy," they wrote. "That family made the decision to give Sarah the gift of life -- and they are the true heroes today."
That quote sounds like, perhaps, the donor family designated Sarah to be the donee. If so, someone else is going to die because they or their family didn't "go the extra mile" and turn what has been a somber and serious process into a popularity contest vying for the affections of the next judge and donor.
I wonder if the Murnaghans will have anything to say to the family of the next wait-list fatality.
I wonder, if at any point, they will regret the inevitable tragedies to come from having turned the organ-donor process into a gameshow.
A second mother, Milagros Martinez, also filed suit last week on behalf of her 11-year-old son, Javiar Acosta, who also has severe cystic fibrosis and is waiting for a lung transplant...[Both families] argued that a 2005 system that revamped the way lungs were allocated for adults and teens may have cut waiting list deaths in that group, but actually penalized children who were younger than 12 but large enough to get adult or teenage-sized lungs.
Well, Sarah's family was apparently wrong about their child being large enough for "adult" sized lungs. Oops.
Which leaves their argument, essentially, that even though the 2005 rules do cut wait-list fatalities, because their children aren't given priority over everyone else's family members, it is a broken system.
I said at the beginning of this "I doubt many parents in their situation and with their means would do less."
Their success here, however transitory, is a shot across the bow of everyone on a wait-list.
Lawyer up. Media up. Pretty yourself up to the judges for your organ. If you don't, you can bet someone else will be doing just that, and your place on the wait-list won't be worth the paper your death certificate is eventually written on.
Posted by: Open Blogger at
07:16 AM
| Comments (326)
Post contains 685 words, total size 4 kb.
Posted by: Beagle at June 15, 2013 07:20 AM (sOtz/)
Posted by: Weimar Republican at June 15, 2013 07:21 AM (Cnqmv)
Posted by: Anna Puma (+SmuD) at June 15, 2013 07:21 AM (BPdDg)
Posted by: BuddyPC at June 15, 2013 07:21 AM (bYQ1a)
Posted by: major major major major at June 15, 2013 07:22 AM (fRYRo)
The last thing we need is medical professionals making decisions, because bureaucratically developed rules and regulations always trump true expertise in Obama's America!
Posted by: Emperor Barky Ochooma I at June 15, 2013 07:23 AM (Cnqmv)
Posted by: Weimar Republican at June 15, 2013 07:24 AM (Cnqmv)
Life sucks. Not everyone gets the transplant they need. Bad things happen. 150 years ago, bringing one child in six to puberty was an accomplishment. It's the never-ending sense of entitlement that just kills me. News flash: Not every single child is entitled to live to adulthood. Some die, for myriad reasons. Deal with it.
Posted by: Captain Ned at June 15, 2013 07:25 AM (i+Fm3)
.
Agreed, nor should it be based on some zero tolerance rule, like age.
Posted by: Javems at June 15, 2013 07:25 AM (c8xU9)
Because we're Staunch Conservatives, we're supposed to let the little girl take a fall because we hate rules choosing who gets what?
Sorry, I ain't buying this as a Hill to Die On. Life isn't fair, and it's doubly unfair when Choom Boy and his ilk hold the reins. You have to fight for what's dear to you these days, and that's what the parents did.
Posted by: MrScribbler at June 15, 2013 07:25 AM (lNAFm)
So your point is, leaving these sorts of decisions up to politicians, lawyers and judges is a bad idea?
Who made the rule that this 11 year old could not receive a set of adult lungs?
Yeah. That's what I thought.
Posted by: BurtTC at June 15, 2013 07:26 AM (TOk1P)
Posted by: boulder toilet hobo at June 15, 2013 07:27 AM (QTHTd)
Posted by: Bob Casey Sr. at June 15, 2013 07:28 AM (tOkJB)
Hey, just so you know, next time you want to choose to give a car to your son for a graduation present, I think the government should force you to give that car to my son instead, that should be the law. Or rather, the government should make up a list of folks whose kids need cars upon graduation and rate it by their needs, then you should be forced to give that car to the person at the top of that list regardless of your desire.
PRICKS.
Posted by: doug at June 15, 2013 07:28 AM (uJ8q7)
I'm an organ donor. I highly recommend that you skip my liver; it's had a helluva workout. Thanks TFG. I don't care where my parts go. I hope someone(s) get good use out of them. Burn the rest of me.
I really think that the system is screwed up. There should be some sort of bidding process for available parts. If you want to increase the supply of something, put a profit motive on it.
Posted by: GnuBreed at June 15, 2013 07:29 AM (cHZB7)
Posted by: Zombie Mantle at June 15, 2013 07:30 AM (Cs2tJ)
Posted by: Tami[/i][/b][/u][/s] at June 15, 2013 07:31 AM (X6akg)
Posted by: rickl at June 15, 2013 07:31 AM (sdi6R)
Posted by: SurferDoc at June 15, 2013 07:32 AM (F+av1)
Posted by: scalpel at June 15, 2013 07:33 AM (eDs8F)
Posted by: Methos at June 15, 2013 07:33 AM (hO9ad)
Posted by: Tami[/i][/b][/u][/s] at June 15, 2013 07:33 AM (X6akg)
Posted by: rickl at June 15, 2013 07:33 AM (sdi6R)
Posted by: I Work for Dick Jones at June 15, 2013 07:34 AM (MSrqi)
I like late night strolls on the beach with my oxygen tank and cuddling up with a good book and a dialysis machine.
Posted by: lowandslow at June 15, 2013 07:35 AM (Fz2C7)
We were recently discussing this need our culture seems to have for EVERYONE to have healthcare,
She said to me, "You know, when I grew up, if you got sick, you died. That's it."
Posted by: Tobacco Road at June 15, 2013 07:35 AM (4Mv1T)
This article is rather confused and it relies on the author's own ignorance as supporting evidence. Never a good start.
1. At what point did the Murnaghans ever claim their daughter was NOT on the "childrens" transplant wait list?
That was not ever the point. The point was that there seemed to be an almost arbitrary cut off between allowing a 10 year old access to adult lungs.
Obviously adults die at a greater frequency than children, for all sorts of reasons. So there are MORE adult organs available for transplant.
THAT'S THE POINT. And that's what the whole case revolved around. Had the Medical profession said, sorry, but there's just no way we can transplant a fully formed adult's lungs into a 10 year old, then it's end of discussion. But they didn't. Quite the reverse....
The fact that Sarah was able to successfully be transplanted with ADULT lings sorta proves the whole "artitary" nature of a bureaucratic decision on when KIDS would be "allowed" access to a greater pool or transplant organs, right?
Posted by: dave at June 15, 2013 07:35 AM (4e1FY)
I don't think krakatoa or anyone else is blaming the parents, as he acknowledged precisely the opposite.
It's everyone that let themselves be emotionally manipulated like an obamabot that's disappointing.
Posted by: Methos at June 15, 2013 07:36 AM (hO9ad)
Posted by: RWC at June 15, 2013 07:36 AM (Ah4d/)
Posted by: John Boehner (pronounced boner) at June 15, 2013 07:37 AM (rcTHI)
Posted by: GnuBreed at June 15, 2013 11:29 AM (cHZB7)
Seriously? You equate the transplant situation with any other business? "Hey, we just got an order for a dozen lungs, ring up our people in China and 'em ship us some!"
Yea... no.
Posted by: KG at June 15, 2013 07:37 AM (IPz9m)
Posted by: That Guy at June 15, 2013 07:38 AM (EMye6)
Posted by: Count de Monet at June 15, 2013 07:38 AM (7BV/9)
In 5,000 years of recorded history, humans have never been able to produce that.
Posted by: Purp[/i][/b][/u][/s] at June 15, 2013 07:38 AM (/gHaE)
Posted by: Evil Blogger Lady at June 15, 2013 07:39 AM (UYjru)
Posted by: SouthTexas at June 15, 2013 07:39 AM (uhFbA)
Posted by: The Mega Independent at June 15, 2013 07:39 AM (Lq5WC)
Get another cup of coffee. No need to bash the cobs here.
Posted by: Tobacco Road at June 15, 2013 07:39 AM (4Mv1T)
Yeah. That's what I thought.
_______________________
Well, I think that part of Ace's OP, at least impliedly, is that rules - even if arbitrary - are more fair than an ad hoc system of special pleading. That a football field is 100 yards is arbitrary - it could be 120 yards or 90 yards - and in any given game if you lengthened it or shortened it from 100 yards it could very well affect the outcome, but no one argues for that because we accept that the 100 yards is fair even though arbitrary.
Posted by: Alec Leamas at June 15, 2013 07:40 AM (nnkXw)
Posted by: rickl at June 15, 2013 07:40 AM (sdi6R)
Posted by: JohnKerryIsADoucheBag at June 15, 2013 07:41 AM (QTVh2)
I agree with this. Let the family sell the organs to the highest bidder. It would less morally reprehensible than the media-campaign strategy.
Posted by: holygoat at June 15, 2013 07:41 AM (vAiDn)
No, that is what every family says when they get a donor organ that saves a life, the rest of your point aside.
Posted by: Travis at June 15, 2013 07:42 AM (9WkMB)
Posted by: Anna Puma (+SmuD) at June 15, 2013 07:42 AM (BPdDg)
Posted by: Kathleen Sebelius at June 15, 2013 07:42 AM (G9Mmf)
Posted by: That Guy at June 15, 2013 07:42 AM (EMye6)
Posted by: Jack Nine at June 15, 2013 07:42 AM (zZahl)
43 -
I had someone very close to me die some years ago. Otherwise healthy, with a non-operable brain tumor. I watched this person die, with strong lungs breathing, strong heart pounding, and all other essential organs perfectly functioning... until the brain stopped sending the signal for them to keep working.
Did ANYONE ANYWHERE offer to make organ donation a possibility?
No.
So it did not happen. You can leave it up to the family to make these decisions immediately before or after, but if they are too emotionally distraught to think clearly enough, it won't happen.
So viable organs get buried every day. Something is wrong with the system. That's where to start, if one wants to begin fixing it.
Posted by: BurtTC at June 15, 2013 07:43 AM (TOk1P)
How about - "yo convict, save this persons life by donating a kidney or lung and we'll knock 5 years off that sentence".
No coercion, just make the offer. They can take it or leave it.
We're already taking DNA samples of all prisoners, so the match data is available.
When they get out and they're minus a few parts, it may lead to a less risk prone lifestyle and less recidivism among donors.
Posted by: Purp[/i][/b][/u][/s] at June 15, 2013 07:43 AM (/gHaE)
Posted by: That Guy at June 15, 2013 11:42 AM (EMye6)
The human trafficking is a business in some places.
I think we gotta stay the hell away from that, and I disagree with that comment on transplants going to the highest bidder.
Posted by: KG at June 15, 2013 07:44 AM (IPz9m)
Posted by: Dack Thrombosis at June 15, 2013 07:45 AM (V1ZIU)
But then you think of the list. How far can they send a heart or lung from where it was donated. Their might have been a person in Florida more in need as they will die in a week but where Cheney was in Wyoming he was at the top of that list. They can not send it by plane to where it is needed fast enough to have it work and then lose the heart for anyone. How far within a geographical region can they send an organ.
As a side note hurry up and make organs in a lab. Custom made for the persons DNA.
Posted by: Trevor (@TJexcite) at June 15, 2013 07:45 AM (CdeLs)
Posted by: Anna Puma (+SmuD) at June 15, 2013 07:45 AM (BPdDg)
And to Ireland....
Posted by: MrScribbler at June 15, 2013 07:45 AM (lNAFm)
Posted by: McGregor at June 15, 2013 07:45 AM (qo244)
Does it seem likely to you that a six year old could take adult lungs? Three? Infant?
There's a line somewhere. How do you think it is better determined-A)Professionals with years of experience looking at succsess rate in previous attempts or B)Whoever can get the most media attention when a decision against the esatblished procedure must be made Right This Instant.
The fact that Sarah was able to successfully be transplanted
The transplant was this week. you would be wise to remain cautious on making conclusions over how successful it was until we see how long she actually lives.
In any case you've missed the point about the forgotten man who didn't get the lungs that were diverted to her. I intend to be shocked when medical privacy laws suddenly prevent us from identifying him.
Posted by: Methos at June 15, 2013 07:46 AM (hO9ad)
If you are over 12 it does NOT matter how long you have waited on the transplant list. What matters is your LAS score. This is a measure of the severity of your illness. So if you have been on the list one hour but you are the sickest you get the lungs if they are a match and in your region.
If you are under 12 it is the amount of time you have waited that matters. So if you are dying and have been on the list one hour you will NOT get the lungs.
The theory behind the over 12 LAS score is that when you treat the sickest person first fewer people die. I and almost every medical professional I have ever met agrees with this position.
In addition, the over 12 list produces about 2,000 gifts of life a year, while the under 12 produces 20.
We fought to have Sarah on the over 12 list because medically there was no difference between Sarah 12 year-old receiving adult lungs and Sarah a 10-year-old receiving adult lungs and because her illness was so severe she would have died if she had waited for pediatric lungs.
In the end UNOS agreed with US and has changed their policy for ALL kids so that children like Sarah can get on the over 12 list if their doctors deem it appropriate medically. UNOS themselves stated that 12 was arbitrary number and that children were dying at almost 3x the rate of adults due to the way the under 12 list functions.
Sarah got lungs quickly after going to the adult list because her LAS finally mattered and she was the sickest one on the list. She had an LAS of 91 out of 100 when transplanted. She did NOT get put to the top of the list she was there due to her severity as UNOS does for everyone over 12.
Posted by: Mrs Compton at June 15, 2013 07:46 AM (dX4hn)
Yeah. That's what I thought.
Posted by: BurtTC at June 15, 2013 11:26 AM (TOk1P)
These rules aren't made by politicians and lawyers. They are made by doctors who sit on panels set up by OPTN and UNOS for that purpose. They also typically take two years to complete a rule change because they solicit input from the medical community and other transplant scientists over those proposed rule changes.
I'll defer judgement on this as a commenter here
previously stated that they were the recipient of a kidney; I'd give
their comment a lot more weight than mine.
Posted by: GnuBreed at June 15, 2013 11:29 AM (cHZB7)
I am the commenter who receive a kidney last year. I said from the beginning that this was an attempt by the family to manipulate the media into pleading their case before in public. I will be curious to see how vigorously their lawyers argue the case this week when the hearing over the temporary injunction takes place. This was also driven to an extent by doctors who believed they could make this work. There are more doctors who feel otherwise because the success rates (measured in percentage still functioning after a given period) are lower in this type of procedure (granted that there is very limited data sine it hasn't happened often.).
Posted by: Zombie John Gotti at June 15, 2013 07:46 AM (1hekh)
Yeah really. You want to eliminate blood shortages? Put a price on it. As it stands, the donor is the ONLY person not making a buck off of their donation. The collector does, the hospital does, the labs do too. Oh,and the recipient pays full retail for that 'donated' blood. So who gets fucked in this process?
I take it that you have no faith in the free market process KG.
Posted by: GnuBreed at June 15, 2013 07:46 AM (cHZB7)
Posted by: DAve at June 15, 2013 07:46 AM (albkL)
Posted by: Jrr at June 15, 2013 07:47 AM (BdVar)
48 -
Sorry, that's another bad analogy. The system is arbitrary because there is no reason 11 year olds should not be eligible for lungs, based on their age.
The problem is, bureaucrats make the rules, not doctors. Not transplant committees at hospitals. Bureaucrats. People for whom arbitrary exercises in power are what they do for a living.
No thanks.
Posted by: BurtTC at June 15, 2013 07:47 AM (TOk1P)
Posted by: CAC at June 15, 2013 07:49 AM (roN49)
We already make all sorts of non-crime things crimes to harvest fines and asset seizure proceeds from hapless victims.
3-felonies-a-day
Posted by: Purp[/i][/b][/u][/s] at June 15, 2013 07:49 AM (/gHaE)
With a free market in organs, you will have people committing crimes in order to obtain the organs. Much like what happens right now when people commit theft in order to steal things to be sold on the black market. And yes organs will go to buyers based on ability to pay, rather than based on medical need. (Although medical insurance will ameliorate that somewhat.)
With a centralized allocation of organs, you will have corrupt bureaucrats and bumbling judges deciding who gets organs. Plus sob stories manipulating the public in order to be bumped up in front of the line.
So there is no perfect world in which only those who "deserve" an organ (in some karmic sense) get the organs, while everybody else doesn't.
Posted by: chemjeff at June 15, 2013 07:49 AM (9GG/0)
Posted by: I Work for Dick Jones at June 15, 2013 11:34 AM (MSrqi
Actually, that is not correct. There is a thing known as a directed donation. If the donor family knows that the organs would be a match based on prior testing, they can designate who gets them.
Posted by: Zombie John Gotti at June 15, 2013 07:49 AM (1hekh)
So our bodies belong to society? I though we were against communism around here.
Posted by: Methos at June 15, 2013 07:49 AM (hO9ad)
Posted by: matt at June 15, 2013 07:49 AM (ES9kw)
Posted by: Burn the Witch at June 15, 2013 07:50 AM (84wuL)
80 -
Did I say that? Do you think twisting my words to fit your argument is a fair way to debate?
You sound more communist than anyone else here, dude.
Posted by: BurtTC at June 15, 2013 07:51 AM (TOk1P)
Heh. If you are going to take from society, you should have to give something back to society. I'd settle for community service in lieu of organ donation for those welfare recipients with deep philosophical objections to the latter. Bottom line, as mentioned above is we need more organs.
Posted by: scalpel at June 15, 2013 07:52 AM (eDs8F)
Posted by: chemjeff at June 15, 2013 07:53 AM (9GG/0)
Heartland Blood Center gives me points for bling like grilling utensils and shit. During the summer, we get free quarts of ice cream from Oberweis, too.
Posted by: Methos at June 15, 2013 07:53 AM (hO9ad)
With unemployment this high, if they offered even $20/pint cash they'd have so much blood they'd be turning people away.
Posted by: Purp[/i][/b][/u][/s] at June 15, 2013 07:54 AM (/gHaE)
Posted by: Burn the Witch at June 15, 2013 07:54 AM (84wuL)
Posted by: GnuBreed at June 15, 2013 11:46 AM (cHZB7)
Free market? Really? That's pretty disingenuous.
The product here is a human organ, which we cannot synthesize just yet, so it's gonna come from two sources: dead and living people. I don't mind the source being the former, but what about the latter? In the example of prisoners that PA gave, that's ok, if it is a choice, but what if it's not?
I'm just concerned it would make organ trafficking even bigger.
Posted by: KG at June 15, 2013 07:55 AM (IPz9m)
Posted by: Tom Servo at June 15, 2013 07:55 AM (hTDbY)
Posted by: Bevel Lemelisk at June 15, 2013 07:55 AM (gvWL9)
Posted by: Anna Puma (+SmuD) at June 15, 2013 07:55 AM (BPdDg)
Posted by: Jack Nine at June 15, 2013 07:55 AM (zZahl)
Posted by: Somewhat Sorry To Offend You at June 15, 2013 07:56 AM (ZR4Xh)
Exactly. I would go even further - whenever one has central allocation of ANY resource, that central allocation machinery eventually gets corrupted into special favors and cronyism and manipulation by the mob, leading to an unjust result no matter how it is viewed.
Posted by: chemjeff at June 15, 2013 07:56 AM (9GG/0)
Posted by: chemjeff at June 15, 2013 07:57 AM (9GG/0)
No coercion, just make the offer. They can take it or leave it.
We're already taking DNA samples of all prisoners, so the match data is available.
When they get out and they're minus a few parts, it may lead to a less risk prone lifestyle and less recidivism among donors.
Posted by: Purp at June 15, 2013 11:43 AM (/gHaE)
Purp, You're a smart guy and I love reading the stuff you write, but you missed the boat on a couple of things here. While kidneys can be donated individually, lungs have to be donated in pairs. Also, matches aren't made by DNA. They are made by comparing anti-bodies. When I started the transplant process and when I went in for the actual transplant, they took 15 vials of blood to do the matching.
Posted by: Zombie John Gotti at June 15, 2013 07:57 AM (1hekh)
Posted by: krakatoa at June 15, 2013 07:57 AM (eCtnP)
Actually, it probably wouldn't - because organs wouldn't be so scarce, the "price" of organs would fall, making it less worthwhile to commit gruesome crimes in order to obtain the organs.
Posted by: chemjeff at June 15, 2013 07:58 AM (9GG/0)
I have no idea what the alternative is. The suggestion that the 'best fit' potential recipient seems logical, i.e., the best candidate for a successful transplant. But that raises other questions..., for instance, what the 'best ' candidate is blind, or deaf, or Downs, etc.? Is the object to select the child that will contribute most to society? It also has to be understood that the CF does not go away because of the transplant.
I have a friend who is a nurse that deals exclusively with CF patients. The stories are heart-breaking. I do not know how she sustains.
Consider this:
More than 10 million Americans are symptomless carriers of the defective CF gene. This blood test can help detect carriers, who could pass CF onto their children. To have cystic fibrosis, a child must inherit one copy of the defective CF gene from each parent.
Each time two carriers of the CF gene have a child, the chances are:
25% (1 in 4) the child will have CF;
50% (1 in 2) the child will carry the CF gene but not have CF; and
25% (1 in 4) the child will not carry the gene and not have CF
It is a simple blood test to detect the CF gene. Cf could be avoided altogether, but it assumes that mating couples are mature and thoughtful. Ha.
Posted by: Mike Hammer at June 15, 2013 07:58 AM (aDwsi)
Posted by: Bob Casey Sr. at June 15, 2013 07:59 AM (tOkJB)
Posted by: YIKES! at June 15, 2013 08:00 AM (mETGQ)
Posted by: chemjeff at June 15, 2013 11:56 AM (9GG/0)
Well, some commenters have been saying that the rules were created by doctors and scientists, not bureaucrats, and if so, the problem is the judiciary, et al, inserting themselves into a process in which they should not really have a part.
As we've seen with other aspects of life here in America, once the courts decide to weigh in on something.... well, screw the rest of us, right?
Posted by: KG at June 15, 2013 08:00 AM (IPz9m)
You lamented the waste of 'viable organs' being wasted because no one made a decision to steal them from the deceased. Last I checked, you had the opportunity to register as an organ donor while living, so you seemed to imply you were talking about the organs of people who did not make such a choice (which is the argument I hear from people in favor of an 'opt out' organ donation system).
You sound more communist than anyone else here, dude.
Citation, please.
Posted by: Methos at June 15, 2013 08:00 AM (hO9ad)
Posted by: rickl at June 15, 2013 08:00 AM (sdi6R)
The rules are created by doctors and scientists, but enforced by bureaucrats.
Plus, doctors and scientists are fallible human beings too, not Solomonic agents of wisdom.
Posted by: chemjeff at June 15, 2013 08:01 AM (9GG/0)
The more that are available by choice legally, the fewer the black market and forced extractions will provide.
There's huge potential untapped sources of organs who's availability could be incentivized various ways. Not just prisoners.
Want to take an early SS retirement at 60 rather than 65? No problem, it'll only cost you a kidney.
Want to knock a year or two of college loans off the books? Half a lung and its done.
Posted by: Purp[/i][/b][/u][/s] at June 15, 2013 08:02 AM (/gHaE)
You mean Lord Acton's Rule might apply to the selection of organ recipients? No, no, no, THIS bureaucracy will have only the best intentions!
Although it might help if you contributed heavily to the Democratic Party recently!
Posted by: Weimar Republican at June 15, 2013 08:02 AM (Cnqmv)
Posted by: Chi-Town Jerry at June 15, 2013 08:02 AM (UTq/I)
Posted by: Waldo at June 15, 2013 08:03 AM (RZwdH)
Posted by: phoenixgirl@phxazgrl..back home at June 15, 2013 08:03 AM (8JJ6O)
Posted by: rickl at June 15, 2013 12:00 PM (sdi6R)
Well yeah, but we have a free market in TVs and gold jewelry, yet thieves still steal them and fence them in black markets. Sure the same thing will happen with organs if there is a free market in organs. But the point here is that there is no perfect system which avoids all bad results, so arguing that X method for allocating organs leads to Y bad result is pointless. The real question is, which method best allocates the extremely scarce resource of human organs? We already know the answer, it's the free market. It is the best system for allocating any scarce resource.
Posted by: chemjeff at June 15, 2013 08:03 AM (9GG/0)
Once the rules are made, poor people should be required to stick to them.
Of course, if it was my daughter, I would purchase a third world child (plus a backup) and have their lungs removed for transplant.
Everyone else can get on a list.
Posted by: jwest at June 15, 2013 08:04 AM (u2a4R)
Posted by: lincolntf at June 15, 2013 08:04 AM (ZshNr)
Posted by: Purp[/i][/b][/u][/s] at June 15, 2013 08:04 AM (/gHaE)
Posted by: Tobacco Road
.................
Damn.. those were the good ole days!
Posted by: Chi-Town Jerry at June 15, 2013 08:04 AM (UTq/I)
Posted by: Lauren at June 15, 2013 08:04 AM (wsGWu)
Posted by: chemjeff at June 15, 2013 12:01 PM (9GG/0)
Yes, I forgot to add that caveat. I can see your argument of why free market in organs could reduce trafficking. The issue I can see here is that gov't regulation of such would be unavoidable, if for no other reason than to fight organ trafficking, and as you said earlier, those regs could end up bringing us back to square one.
*sigh*
Posted by: KG at June 15, 2013 08:04 AM (IPz9m)
Want to take an early SS retirement at 60 rather than 65? No problem, it'll only cost you a kidney.
Want to knock a year or two of college loans off the books? Half a lung and its done.
Posted by: Purp
-------------------------
Hold it. Are you suggesting that taxpayers buy organs?
Posted by: Mike Hammer at June 15, 2013 08:05 AM (aDwsi)
Posted by: rickl at June 15, 2013 08:06 AM (sdi6R)
Posted by: Waldo at June 15, 2013 08:07 AM (RZwdH)
Posted by: Mike Hammer at June 15, 2013 11:58 AM (aDwsi)
How? Pass a law that they can't have kids?
Posted by: CharlieBrown'sDildo at June 15, 2013 08:07 AM (WW8xK)
Posted by: chemjeff
............
Really? are you fucking kidding me?
So, the rich ALWAYS will get the organs.
Blackhawks playoff tickets for tonight are on sale on the free market.. $3500 - $6000 will get you center ice. Yeah.. pretty much the same as organs, huh?
Posted by: Chi-Town Jerry at June 15, 2013 08:07 AM (UTq/I)
Posted by: Lauren at June 15, 2013 08:07 AM (wsGWu)
Posted by: rickl at June 15, 2013 12:06 PM (sdi6R)
And make money while doing it!
Posted by: Weimar Republican at June 15, 2013 08:07 AM (Cnqmv)
Posted by: lincolntf at June 15, 2013 08:07 AM (ZshNr)
Sure. Size/Height would probably be better. Of course people would then complain that you're discriminating against any number of grievance groups with a height disadvantage.
Posted by: Methos at June 15, 2013 08:08 AM (hO9ad)
Posted by: phoenixgirl@phxazgrl..back home at June 15, 2013 08:08 AM (8JJ6O)
Posted by: Golfman in NC at June 15, 2013 08:08 AM (FZ3fq)
Posted by: KG at June 15, 2013 08:08 AM (IPz9m)
Posted by: KG at June 15, 2013 12:04 PM (IPz9m)
well yeah, there will be government regulation of a free market in organs, just like there is government regulation of any free market, but *proper* government regulation ought to be directed towards keeping the market truly free (i.e., making it difficult to do things like commit fraud) as opposed to impeding the free flow of organs.
Posted by: chemjeff at June 15, 2013 08:09 AM (9GG/0)
Posted by: Waldo at June 15, 2013 08:09 AM (RZwdH)
Posted by: KG at June 15, 2013 12:00 PM (IPz9m)
That was one of my problems with the initial discussion of this. People here were accusing Sebelius of determining who lived and who died. I was making the point that she may be a fool in most cases, but she was right on this. She said she wasn't going to substitute her judgement for the judgement of the doctors and scientists who made these rules.
As for the issue of whether this was a directed donation. I don't know that the family's statement implies that. They could have been thanking the family for donating the organs in the first place.
Posted by: Zombie John Gotti at June 15, 2013 08:09 AM (1hekh)
Posted by: Ray Van Dune at June 15, 2013 08:09 AM (3PsKd)
The govt already incentivizes and discourages thousands of things and activities. This would be just another drop in a huge bucket.
Posted by: Purp[/i][/b][/u][/s] at June 15, 2013 08:09 AM (/gHaE)
1. In the adult list, the determination is based partly on who is the sickest.
2. In the child list, it is based on who has been on the list the longest.
3. Why wasn't the decision made on size and weight, since there is a wide variation in those parameters for 10-year olds.
Posted by: Miss Marple at June 15, 2013 08:09 AM (GoIUi)
Cue the latest niche field of consulting/public relations/law: -- how to best "position" yourself for a transplant. Build the PR cost into the transplant cost. Let some future Lois Lerner decide.
Posted by: Buckethead at June 15, 2013 08:09 AM (u3N3z)
So, the rich ALWAYS will get the organs.
Posted by: Chi-Town Jerry at June 15, 2013 12:07 PM (UTq/I)
Do you ever think before you comment?
chemjeff is correct. But your simplistic concept of the free market doesn't include the possibility that altruism is a huge part of it.
Posted by: CharlieBrown'sDildo at June 15, 2013 08:10 AM (WW8xK)
I think you meant the "rich and politically connected" will always be able to get the best and latest. Everyone else has to wait.
Posted by: Weimar Republican at June 15, 2013 08:10 AM (Cnqmv)
The rich will always get the organs no matter what system is in place. If it is a centralized allocation system of organs, the rich will instead use their wealth and "pull" to manipulate the bureaucracy.
There is no ideal system here.
Posted by: chemjeff at June 15, 2013 08:10 AM (9GG/0)
Posted by: phoenixgirl@phxazgrl..back home at June 15, 2013 08:11 AM (8JJ6O)
True.
And chemjeff, that's the crux of the matter, isn't it? That the regulations be *proper*, but with this gov't we have.....
Posted by: KG at June 15, 2013 08:12 AM (IPz9m)
But that's not fair!
Posted by: California State College graduate at June 15, 2013 08:13 AM (WW8xK)
/Lois Lerner
Posted by: Jack Nine"
No need! Just shoot me an email, bro!
Posted by: PRISM at June 15, 2013 08:13 AM (ZWaLo)
chemjeff is correct. But your simplistic concept of the free market doesn't include the possibility that altruism is a huge part of it.
Posted by: CharlieBrown'sDildo
............
Do you? Ever take Econ 101?
Supply/Demand.. look it up.
The very reason we do NOT put a price on organs (other than the ancillary costs of harvesting/transplanting) is to keep them out of the "free" market where the price would naturally rise to a point where only the richest would EVER get a transplant.
Posted by: Chi-Town Jerry at June 15, 2013 08:14 AM (UTq/I)
Posted by: Tami[/i][/b][/u][/s] at June 15, 2013 08:14 AM (X6akg)
Posted by: lincolntf at June 15, 2013 12:04 PM (ZshNr)
That his wife was a match is an oddity. It does happen more often than you would expect. On a side note, there is a process known as paired donations. That's a case when a potential living donor does not match the intended recipient but does match another AND that recipient has a donor who matches the other recipient. In that case, all four operations are done simultaneously and the organs are exchanged. It is done simultaneously to prevent a donor from backing out after their friend gets a kidney. They have actually done that with as many as 11 pairs. The logistics dictated that that could not do it simultaneously, so it was done over 2 days.
Posted by: Zombie John Gotti at June 15, 2013 08:14 AM (1hekh)
And Marco expects us to believe we will not be funding the world with his new bill?
Posted by: PJ at June 15, 2013 08:15 AM (ZWaLo)
Posted by: BCochran1981 - Credible Hulk at June 15, 2013 08:15 AM (GEICT)
Her's a corollary issue -- some organs are 'lost' because the recipient doesn't religiously take their anti-rejection drugs/can't afford them for the rest of their lives. Wouldn't it be better, considering the limited availability, to select recipients based on their ability to ensure they can keep that organ healthy? Yes, that means those with the ability to buy their drugs on the open market if needed.
Posted by: GnuBreed at June 15, 2013 08:15 AM (cHZB7)
I agree that this is a concern. But I think you also have to look at it from the point of view of *both* the donor *and* the recipient.
Posted by: chemjeff at June 15, 2013 08:15 AM (9GG/0)
Charity.
Explain how your concept of the free market justifies Americans being the most generous people in the world.
Posted by: CharlieBrown'sDildo at June 15, 2013 08:16 AM (WW8xK)
Taxpayer funded organs? You'll put Hammond out of business! .......................oh, never mind.
I was in a band who had a B3 player. He had an old ambulance which made it easy to load and unload. Lights worked and everything. His business card had a picture of the ambulance next to the phrase, "Vital organ transport."
The drummer in that band had a retired Crown Vic cop car with a spotlight. One night we were unloading after a gig and got a big laugh from all the people who'd pull up, see those two vehicles, then turn around to leave.
Posted by: BackwardsBoy, who did not vote for this shit at June 15, 2013 08:16 AM (0HooB)
The entire health care debate in this country is one massive demonstration of the logical fallacy of argumentum ad passiones -- appeal to emotion.
There is no reason to think that is ever going to change. This kid and her lungs are merely one particular application of it.
Just wait until the race card gets played in these cases. whooo-eee! Sick black kid, kidney, Rev. Al. That'll make for some thoughtful reflection and dispassionate decision-making.
Posted by: Liechendiener at June 15, 2013 08:16 AM (u3N3z)
Exactly. Ability to pay is clear cut, up front and unambiguous. Of the two choices -- and I agree that your two choices are the only available choices -- it is the most ethically proper of the two, and the least open to gaming by bureaucrats.
Posted by: holygoat at June 15, 2013 08:17 AM (vAiDn)
Posted by: Fritz at June 15, 2013 08:17 AM (G9Mmf)
Posted by: Tami[/i][/b][/u][/s] at June 15, 2013 08:17 AM (X6akg)
Posted by: Mike Hammer at June 15, 2013 11:58 AM (aDwsi)
How? Pass a law that they can't have kids?
Posted by: CharlieBrown'sDildo
-----------------------------
Charlie--- You did see the words 'mature' and 'responsible' didn't you? The point is that if couples took a blood test before deciding to have children, they would know the odds of having a child with CF. For me, a 25% chance is way too high. Time to find another mate or adopt. I suppose the best way to deal with things would be to test everyone at a young age, so that they KNOW that they are CF carriers, before they reach sexual maturity.
Posted by: Mike Hammer at June 15, 2013 08:17 AM (aDwsi)
There is no ideal system here.
Posted by: chemjeff
..........
Patently false. First, you are talking out of your ass about a "centralized allocation system". They are regional because organs have a very short shelf life and often would not last a transcontinental airplane ride.
The current system disallows pricing of organs. Some very rich manipulate the system by being able to move to a region with fewer needy recipients. But that's about it.
It is as fair a system as you can get given the intricacies.
Posted by: Chi-Town Jerry at June 15, 2013 08:17 AM (UTq/I)
Posted by: scalpel at June 15, 2013 08:17 AM (eDs8F)
I would say, that if you have a truly free market, it must include the liberty to dispense with your property as you see fit; and so if you wish, you may choose to give your organs to whomever you wish regardless of price. But that can only happen in the context of having the freedom to do so.
Posted by: chemjeff at June 15, 2013 08:18 AM (9GG/0)
Posted by: Nom de Blog at June 15, 2013 08:19 AM (JSmUP)
Zombie John Gotti, I knew a guy who had a kidney transplant and his wife
was the donor. Is that freakishly rare or not? It happened before I met
the couple, and always struck me as strange/serendipitous.
Posted by: lincolntf at June 15, 2013 12:04 PM (ZshNr)
That his wife was a match is an oddity. It does happen more often than you would expect. On a side note, there is a process known as paired donations. That's a case when a potential living donor does not match the intended recipient but does match another AND that recipient has a donor who matches the other recipient. In that case, all four operations are done simultaneously and the organs are exchanged. It is done simultaneously to prevent a donor from backing out after their friend gets a kidney. They have actually done that with as many as 11 pairs. The logistics dictated that that could not do it simultaneously, so it was done over 2 days.
Posted by: Zombie John Gotti at June 15, 2013 12:14 PM (1hekh)
I think its more common now that the anti-rejection drugs are a lot better. ie you don't need to be as close a match as you were in the past to donate a kidney. Racist asshole "comedian" George Lopez got a kidney from his wife. Before they got divorced of course.
Posted by: buzzion at June 15, 2013 08:20 AM (LI48c)
Posted by: BCochran1981 - Credible Hulk at June 15, 2013 12:15 PM (GEICT)
The free market unleashes people from the constraints of government. They are free to use their wealth in whatever way they choose.
Many will spend on themselves. Many will spend very little, and many will spend on others.
Andrew Carnegie. John D. Rockefeller.
Posted by: CharlieBrown'sDildo at June 15, 2013 08:20 AM (WW8xK)
Posted by: CharlieBrown'sDildo
.............
Oh stop. WTF does one have to do with another?
We are talking about keeping organs off the free market. That has nothing to do with American generosity.
You are somehow equating organ transplant rules - defained by committees of doctors - with government control or something.. or whatever.. DEATH PANELS!
Jeebus.
And, it's not MY concept of the free market. That's how the free market works, and that is why organs should not be on the free market.
Posted by: Chi-Town Jerry at June 15, 2013 08:21 AM (UTq/I)
Posted by: Javems at June 15, 2013 11:25 AM (c8xU9)
Especially when the age preference seems reversed in addition to being arbitrary and behind the medical state of the art. Nothing personal 55 year old awaiting lungs.
Who did make a rule based entirely on age and not potential success anyway? I don't actually know.
Ultimately someone with less PR was denied a transplant. Bad precedent in one way but a great step for children in another.
Posted by: Beagle at June 15, 2013 08:21 AM (sOtz/)
Posted by: Lauren at June 15, 2013 08:21 AM (wsGWu)
Posted by: chemjeff at June 15, 2013 12:18 PM (9GG/0)
I owe you a beer. You seem to be the only other person who understands this.
Posted by: CharlieBrown'sDildo at June 15, 2013 08:22 AM (WW8xK)
Posted by: Chi-Town Jerry at June 15, 2013 12:17 PM (UTq/I)
Having the system centralized by region does not make it any less centralized in a conceptual sense, especially when compared to a free market.
And federal lawsuits ain't cheap, you know. The poor starving orphan who needs a liver will always be at the back of the line compared to the rich and connected. The difference is, if individuals have the freedom to dispense with their organs as they see fit, the poor starving orphan may be the recipient of a charitable donation, as opposed to now, when that poor starving orphan is just screwed no matter what.
Posted by: chemjeff at June 15, 2013 08:22 AM (9GG/0)
Posted by: Ed Anger at June 15, 2013 08:22 AM (tOkJB)
Posted by: Waldo at June 15, 2013 08:23 AM (RZwdH)
Posted by: Chi-Town Jerry at June 15, 2013 12:21 PM (UTq/I)
You might be even dumber than O'Reilly when it comes to economic issues.
Posted by: Captain Hate at June 15, 2013 08:23 AM (IlO3r)
I'd like to question that assumption. Suppose Sarah's case - and the publicity - generates more interest in becoming a donor. That is, suppose her case actually ends up saving MORE lives because she was an activist and people started thinking about donating (or - for the capitalists out there - selling) their organs.
Just sayin'.
Posted by: A One-Eyed Cat Peepin' in the Seafood Store at June 15, 2013 08:24 AM (eMtQ2)
Posted by: CharlieBrown'sDildo at June 15, 2013 12:22 PM (WW8xK)
Thanks
but I'm not going back to New Jersey to claim it. You'll have to come out here to Missour-ah.
Posted by: chemjeff at June 15, 2013 08:24 AM (9GG/0)
Posted by: rickl at June 15, 2013 08:25 AM (sdi6R)
The orphan lives a cleaner life than the rich fuck who drinks a fifth of hooch each day and smokes a pack of Camels.
You are completely ignoring all other factors to allow price to dominate. Foolish. I'm glad doctors are deciding these things rather than free-market-at-any-cost blog commenters.
Posted by: Chi-Town Jerry at June 15, 2013 08:26 AM (UTq/I)
Posted by: SarahW at June 15, 2013 08:28 AM (LYwCh)
Posted by: Fox 2! at June 15, 2013 08:28 AM (XFTOV)
Posted by: Tami[/i][/b][/u][/s] at June 15, 2013 08:28 AM (X6akg)
Of course organs should be on the free market.
Once the supply is opened up with the market, the demand will be easily met and prices will fall dramatically. Poor families can use the organs of their dead relatives to pay for their funerals and even have a little left over.
Ideally, with a free market on organs, doctors could pick and choose among dozens or hundreds of organs to find the perfect match. People who would have died previously would live and people who are already dead won't miss their kidneys.
Sure seems logical.
Posted by: jwest at June 15, 2013 08:28 AM (u2a4R)
Posted by: BCochran1981 - Credible Hulk at June 15, 2013 08:29 AM (GEICT)
I'll wait until a gainsaying, sub-literate better comes along to tell us we have it all wrong and to talk about himself.
Posted by: weft cut-loop [/i] [/b] at June 15, 2013 08:29 AM (H4Rpo)
Posted by: Cindy Munford at June 15, 2013 08:29 AM (6MiMG)
Posted by: chemjeff at June 15, 2013 12:24 PM (9GG/0)
I prefer paved roads and indoor plumbing....but I appreciate the invitation.
Posted by: CharlieBrown'sDildo at June 15, 2013 08:29 AM (WW8xK)
The problem is, bureaucrats make the rules, not doctors. Not transplant committees at hospitals. Bureaucrats. People for whom arbitrary exercises in power are what they do for a living.
No thanks.
Posted by: BurtTC at June 15, 2013 11:47 AM (TOk1P)
______________________________________
My point that arbitrary can be the most fair. If the science is out of date, and the cutoff moved for a good reason, it should be moved - but there should be an objective set of rules, and not one set of rules for cute kids who can mount an effective media and legal campaign, and another set of rules for those who can't. That is effectively what happened in this case - all you've done is exchange one set of bureaucrats for another set of equally capricious actors - viz, the media, et al.
To further the analogy, if there was reason to believe that changing the rules of football to make the field 90 or 120 yards because it would make the game better/more exciting/safer, then it should be changed but changed at once and for all games in a season - not in the event of one game where it would favor one team and its skill set.
Posted by: Alec Leamas at June 15, 2013 08:30 AM (nnkXw)
But if you aren't willing to apply free-market principles to resources that are exceptionally scarce, like organs, then what is the basis for your support for free markets in general? Because it delivers cheap shit from China?
Posted by: chemjeff at June 15, 2013 08:31 AM (9GG/0)
Posted by: krakatoa at June 15, 2013 08:31 AM (eCtnP)
Posted by: rickl at June 15, 2013 08:32 AM (sdi6R)
Posted by: WalrusRex at June 15, 2013 08:32 AM (VlXYw)
*Waves frantically*
Over here! Hey Over Here!
I might have something say about this.
Wait Art Caplan's booked an interview on all four cable news networks, quotes in every major newspaper and has already rendered his decision?
Oh well case closed. I mean it's not like the man has ever totally screwed the pooch before (Jesse Gellsinger could not be reached for comment.)
Google it.
In any case, I'm totally fine with redoing the criteria, but people aren't going to like the way it turns out. Lung transplants will likely be based on the relative size of the patient to the lungs themselves.
Outcome: This girl probably doesn't get the lungs. The adult system really wasn't capable of handling this case yet (hence the rules). Just because her doctors are arrogant twats doesn't mean they were necessarily right (and we're unlikely to find out because if the organ fails, the story will be old news by then.)
Oh, and then there's the issue of domino transplants. Her chances of long term survival are better with a domino transplant of the heart and lungs (then giving the heart to another person since it's healthy.)
Except, you can't do those in this case because the heart can't be shaped.
Yeah, no one ever talked about that.
Posted by: tsrblke at June 15, 2013 08:32 AM (GaqMa)
Me too!
Posted by: Zombie Mickey Mantle at June 15, 2013 08:33 AM (eDs8F)
Posted by: Mike Hammer at June 15, 2013 08:34 AM (aDwsi)
Posted by: SarahW at June 15, 2013 08:34 AM (LYwCh)
Given medical realities as I perhaps dimly perceive them, I don't see how organs or the skill to transplant them fit neatly into any economic model. Have we reached the one-size-fits-all point of transplantation? Tissue type is still a real thing right?
This is not fungible natural gas you can pipe all over the country.
Nor can anyone have a right to the skill or organs of another person.
Posted by: Beagle at June 15, 2013 08:34 AM (sOtz/)
Posted by: Infidel at June 15, 2013 08:34 AM (gqEUi)
Posted by: lincolntf at June 15, 2013 08:34 AM (ZshNr)
Posted by: VKI at June 15, 2013 08:34 AM (TKoA3)
"It's 2 pm and my liver is aching. What's wrong with it. doc?"
"Give it a shot of single malt scotch."
A couple of days later --
"How the hell did you know that would solve the problem?"
"I got the other half of that donor's liver."
Posted by: GnuBreed at June 15, 2013 08:35 AM (cHZB7)
Mature and thoughtful people with the CF gene will sometimes roll the dice and have kids.
Posted by: CharlieBrown'sDildo at June 15, 2013 08:35 AM (WW8xK)
I'm thinking you missed my point. Just went straight back to the zero-sum game thing: "It's either you or me." Come on - it just isn't necessarily so.
Posted by: A One-Eyed Cat Peepin' in the Seafood Store at June 15, 2013 08:35 AM (eMtQ2)
Actually, that is Medicaid. And it is willing to pay due to the system of socialized medicine we have established in this country. Three cheers for centralized planning!
The orphan lives a cleaner life than the rich fuck who drinks a fifth of hooch each day and smokes a pack of Camels.
Really now. What is the basis for this claim?
You are completely ignoring all other factors to allow price to dominate. Foolish. I'm glad doctors are deciding these things rather than free-market-at-any-cost blog commenters.
Actually, my overriding concern is liberty to control the direction of my life and my possessions. It just so happens that centralized control over my organs doesn't let me decide what happens to them.
Jerry, would you object to a system in which individuals got to decide how their organs were donated, independent of any sort of price associated with them?
Posted by: chemjeff at June 15, 2013 08:36 AM (9GG/0)
What if it was one of the other people on her wait list that was going to invent that?
Shit! Posted by: krakatoa
Catch-22
Posted by: Joseph Heller at June 15, 2013 08:36 AM (aDwsi)
Posted by: buzzion at June 15, 2013 12:20 PM (LI48c)
That may be somewhat of a factor, but one of my immunosuppressant drugs was invented in 1984 and one is from 1955.
Personally, I will listen to free market arguments on organ allocation only from those people who are either on a transplant waiting list or have loved ones who are. Everyone else is just making noise about something they know absolutely nothing about.
Posted by: Zombie John Gotti at June 15, 2013 08:36 AM (1hekh)
105 -
You did it again, nitwit. I never said anything about anyone stealing anything. Your reading problems are not my responsibility. What I said, and let me use small words so you can understand, was: when people are dying, it would be a GOOD THING if medical personnel suggested to family members that organ donations are a GOOD IDEA.
Not mandatory. An option.
Are we clear?
Now, try your argument again, genius.
Posted by: BurtTC at June 15, 2013 08:36 AM (TOk1P)
Posted by: SarahW at June 15, 2013 08:37 AM (LYwCh)
Posted by: Tami at June 15, 2013 12:14 PM (X6akg)
I like it!
Posted by: Mark O'Rubeo at June 15, 2013 08:37 AM (Cnqmv)
Posted by: VKI at June 15, 2013 12:34 PM (TKoA3)
Bullshit.
The system advanced. Liver and Kidney rules changed. Lung rules didn't.
Nifty fact, livers are far easier to trim than any other solid organ and kidneys aren't transplanted in the same place as the recipients old organ (meaning size isn't as much of an issue.
The "System is old and needs to be updated" argument forgets quite a few facts.
Posted by: tsrblke at June 15, 2013 08:37 AM (GaqMa)
Posted by: Kathleen Sebelius at June 15, 2013 08:38 AM (hTDbY)
Posted by: CharlieBrown'sDildo
-----------------
Probably...., but if they have made that decision, then my help is forfeit, as surely as if they made a decision to shoot themselves in the foot.
Posted by: Mike Hammer at June 15, 2013 08:38 AM (aDwsi)
Frankly I'm OK with an "Opt-Out" system provided opting out is easy as hell.
The organ procurement teams are already fairly well separated from any care teams, so that doesn't concern me as much.
It'd probably be more honest than what we have now which is people making uninformed decisions at the DMV which states are straightening to be fairly irrevocable by the family.
Posted by: tsrblke at June 15, 2013 08:40 AM (GaqMa)
Posted by: Laddie Putin at June 15, 2013 08:40 AM (G9Mmf)
Posted by: soothsayer at June 15, 2013 08:41 AM (yhYn1)
Posted by: krakatoa at June 15, 2013 08:42 AM (eCtnP)
I lost a kidney last month and was philosophically curious about this issue so I got in touch with Virginia Postrel, who has donated a kidney to her friend Dr. Sally Satel ( an amazing act, in anyones book and one thant saved her friend's life) because of her libertarian views on organ donation. She thinks that the donors families should be recompensed.
I agree with her 100%. I don't need a donation (my other kidney is fabulous) but many thousnads of people do. we need to greatly expand the donation pool.
Posted by: TexasJew at June 15, 2013 08:42 AM (1LOv8)
Posted by: Mike Hammer at June 15, 2013 12:38 PM (aDwsi)
?!
I understand the sentiment here. But I'm curious what you mean by "my help." I don't like the outcome in this case exactly, but it doesn't mean I want to exclude CF kids from getting any organ transplants ever.
I just don't want them to become a special case.
Or should we roll to the other extreme and go all GATTACA on this: "well there's a test for that and you opted not to have it (embrace the eugenics!) so no healthcare for you!"
Posted by: tsrblke at June 15, 2013 08:43 AM (GaqMa)
191 -
Agreed. Bureaucrats being part of the process is a problem. What would happen though, if we had a system where medical experts made these decisions, free from the arbitrary meddling of politicians and lawyers, would most likely include guidelines and standards, but not necessarily absolute cut-offs.
I realize we don't have anything of the sort right now, but instead we had a situation where a member of the Obama administration revealed herself to be part of the problem, and now we seem to have people around here who want to carry her water for her, by making this about how unfair it was for this little girl to have gotten a lung.
That makes absolutely no sense to me.
Posted by: BurtTC at June 15, 2013 08:43 AM (TOk1P)
Posted by: Mike Hammer at June 15, 2013 12:17 PM (aDwsi)
Yes, DNA and other medical compatibility testing should be done on all children and adults and added to our database.
Posted by: PRISM Medical Advisory Office Director at June 15, 2013 08:46 AM (Cnqmv)
Posted by: krakatoa at June 15, 2013 12:42 PM (eCtnP)
Krakatoa,
I just had a discussion with a fellow classmate about this. And perhaps the better way of looking at it is "is our concern with the organ, or with the person in need."
The outcomes are fascinatingly different. My concern is usually with the organ, they're a rare thing and I want them to go where they have the greatest probability of a successful transplant that lasts a long time (usually, I was just reading about some cool cases where you take a diseased liver from a patient getting a liver transplant and give it to an older patient for whom the disease spreading time is not really a problem, thus making a "damaged" organ useful again.)
Anyway, that's a side case. Point is, Organs, greatest usefulness possible.
Or our concern can be with the potential recipient (as it was here) whereby we wanted this particular patient to get an organ, regardless of the potential that the organ may not last as long.
Posted by: tsrblke at June 15, 2013 08:46 AM (GaqMa)
Really, ZJG? hmmmm, perhaps I should remove myself from the donor list then, since MY opinion means shit.
Then I don't have to worry about what my opinion means. I deferred to you earlier, but this stance of yours is making me take a second look.
Posted by: GnuBreed at June 15, 2013 08:47 AM (cHZB7)
Ideally, there would be a system that combines the natural altruistic tendencies of Americans with a free-market approach to the remaining need.
Charitable donations directed to people who are willing to sell their kidneys is a beginning.
Posted by: CharlieBrown'sDildo at June 15, 2013 08:48 AM (WW8xK)
Posted by: BurtTC at June 15, 2013 12:43 PM (TOk1P)
We're so close to this now actually.
UNOS (and the affiliated OPTNs) are separate entities from the government.
The Organ transplant laws were never changed from the 80s though to sever the original connection that authorized setting them up (and gave the Secretary of HHS power to tweak the contract.)
Given that in 30 years no one has dethroned UNOS (and as Krakatoa points out, the system works well the vast majority of the time) perhaps it's time to sever HHS's connection to UNOS and let it stand without HHS oversight.
Minor tweak to the law, solves many of the problems.
Posted by: tsrblke at June 15, 2013 08:49 AM (GaqMa)
Posted by: Ed Anger at June 15, 2013 08:49 AM (tOkJB)
Posted by: SarahW at June 15, 2013 08:50 AM (LYwCh)
. . .
Posted by: krakatoa at June 15, 2013 12:42 PM (eCtnP)
Yeah - if you say so; must be true. Prove it.
Posted by: A One-Eyed Cat Peepin' in the Seafood Store at June 15, 2013 08:50 AM (eMtQ2)
Posted by: krakatoa at June 15, 2013 12:42 PM (eCtnP)
Agreed.
The only question is whether the guidelines should be modified because of advances in transplant technique, technology and pharmacology.
But they should be modified based on scientific analysis of the issue, not by an hysterical media and a cute white kid wearing an oxygen mask.
Posted by: CharlieBrown'sDildo at June 15, 2013 08:51 AM (WW8xK)
Posted by: Lurking lung doctor at June 15, 2013 08:51 AM (WnGDS)
Posted by: Empire of Jeff at June 15, 2013 08:52 AM (g9VwM)
Posted by: A One-Eyed Cat Peepin' in the Seafood Store at June 15, 2013 12:50 PM (eMtQ2)
He just did.
Posted by: CharlieBrown'sDildo at June 15, 2013 08:52 AM (WW8xK)
Organs have tremedous value. It is a critical thing and can be tremendously traumatic for the donors family, especailly when the donor is flown in a vegetative state and taken off life support on situ to donate the organ,
Let the donor's families get recompense for this.
The real ghoulishness is letting people die unneccessarily for lack of organs.
Posted by: TexasJew at June 15, 2013 08:52 AM (1LOv8)
When I die, my body becomes the property of my family. If they want to part me out and sell the organs they should be allowed the profit.
Even if they sell me to a dog food manufacturer, that'd be starting the next food cycle higher than I'd be as worm food in a grave. Free markets make the world a better place.
Posted by: Ook? at June 15, 2013 08:52 AM (OQpzc)
I realize we don't have anything of the sort right now, but instead we had a situation where a member of the Obama administration revealed herself to be part of the problem, and now we seem to have people around here who want to carry her water for her, by making this about how unfair it was for this little girl to have gotten a lung.
That makes absolutely no sense to me.
________________________________________
What I'm saying is that I don't think it is more fair for the media to decide who gets a set of lungs than it is for an unresponsive bureaucracy with an arbitrary cutoff. Both situations are an argument for going to a different system of allocating organs entirely, but it the former is definitely not preferable to the latter, and probably more prone to abuse and capriciousness taken in totality.
And I anticipate that making decisions on a case-by-case basis and on the recommendations of doctors would yield more lawyering of the system, not less.
Finally, I don't think anyone is begrudging the girl her set of lungs, only commenting that the person who would have been the recipient is now waiting longer for the next set of lungs to come along, and may never get a set of lungs in time to save his or her life. That person simply didn't have the media/political/legal juice that this girl's family was able to muster, and that is a fairly shitty reason to die.
Posted by: Alec Leamas at June 15, 2013 08:52 AM (nnkXw)
Posted by: CharlieBrown'sDildo at June 15, 2013 12:48 PM (WW8xK)
I still have substantial fears about the commodification of the human body on this issue though.
If I can sell my Kidney, can I sell my heart? How about while I'm still alive?
Also what do we do about the fact that organ sales would pretty much create an underclass of people selling their organs and skew the distribution of "donors" (for lack of a better term, hence the scare quotes) towards the poor, while likely skewing the recipients towards the rich.
We'd not even come close to "solving" a problem while creating several more.
Better to probably find ways to increase general donorship. (Also, I don't think we're too long from growing kidneys. Those will be the first organ rendered moot I think.)
Posted by: tsrblke at June 15, 2013 08:53 AM (GaqMa)
Posted by: Seamus Muldoon at June 15, 2013 08:53 AM (AGCbo)
224 -
Amen. And the point I tried to make earlier, before I got accused of being a communist, is that it would be nice if people who are in a position to make this decsion, to facilitate organ donation, would be better informed about it at the time a potential donor is dying.
All you would have to do is ask the question. Americans can be remarkably generous when they are given the opportunity to help people in need.
Posted by: BurtTC at June 15, 2013 08:53 AM (TOk1P)
Television has been the greatest enabler of shallow-thinking, evil-consoling, and style-before-substance in the 20th century, with no signs of its influence waning.
Posted by: BeckoningChasm at June 15, 2013 08:53 AM (xjpRj)
Posted by: Lurking lung doctor at June 15, 2013 12:51 PM (WnGDS)
Let's say you had a particularly good year amputating limbs and fleecing the health care industry*. Then you get a diagnosis of some nasty lung cancer.
And I am the only perfect match, but I want $500,000 for one lung. You have the cash, and I have the lung.
What do you do?
*sarcasm
Posted by: CharlieBrown'sDildo at June 15, 2013 08:55 AM (WW8xK)
In Soviet Russia....
Posted by: chemjeff
-----------------
I did not imply that it was a good solution..., if 'solution' is the right word. It merely takes all of the questions/conflict off the table. It seems the next 'fairest' answer is simply to allow people to do what they wish with their own resources. The objection is then raised that only the 'rich' will benefit. Well..., so be it. The rich benefit in many, many ways where material things are concerned, and this issue is just one of them. It would be a short step to complain that the rich enjoy more comfort (Not fair!), better food (Not fair!), etc. etc.
I will reiterate that CF specifically, is 100% avoidable, if the parents assume responsibility.
Perhaps the 'printing' of organs will indeed come about. I hope so, and hasten the day.
Posted by: Mike Hammer at June 15, 2013 08:55 AM (aDwsi)
Posted by: SarahW at June 15, 2013 12:50 PM (LYwCh)
Clearly you need a better understanding of Sanger.
I doubt she'd support adoption at all.
She was determined to eliminate the "unwanted poor." I suspect were she alive today she'd be a disciple of Peter Singer suggesting we off any unwanted babies after they're born.
Posted by: tsrblke at June 15, 2013 08:55 AM (GaqMa)
Posted by: Seamus Muldoon at June 15, 2013 08:56 AM (tRZ0c)
Posted by: lincolntf at June 15, 2013 08:56 AM (ZshNr)
231 -
Sounds good to me. And at the same time, take a shot at educating Americans on the notion that some things in this country work better WITHOUT GOVERNMENT INVOLVEMENT/INTERVENTION.
So... win/win.
Posted by: BurtTC at June 15, 2013 08:56 AM (TOk1P)
Posted by: tsrblke at June 15, 2013 12:53 PM (GaqMa)
Believe me, in cadaver labs in med schools, there's no such thing as a rich cadaver.
The important thing is the availability of organs to save lives.
The PC bullshit is over. Besides, what about blood banks?
Posted by: TexasJew at June 15, 2013 08:57 AM (1LOv8)
Posted by: Mike Hammer at June 15, 2013 12:55 PM (aDwsi)
Having a girl baby is 100% avoidable as well.
Thus the end to teen pregnancy.
You have to get support for abortion before you statement makes any sense. So it's far from even being reasonable given the current makeup of this country.
Posted by: tsrblke at June 15, 2013 08:57 AM (GaqMa)
Posted by: CharlieBrown'sDildo at June 15, 2013 12:52 PM (WW8xK)
Persuasive son-of-a-gun; give him that.
Posted by: A One-Eyed Cat Peepin' in the Seafood Store at June 15, 2013 08:57 AM (eMtQ2)
Posted by: Vic
--------------
He's dead, Jim! Grab his tricorder. I'll get his wallet!
Posted by: Dr. Leonard McCoy at June 15, 2013 08:58 AM (aDwsi)
Posted by: t-dubya-d at June 15, 2013 08:58 AM (u6lBN)
Posted by: TexasJew at June 15, 2013 12:57 PM (1LOv
If memory serves the vast majority of blood banks that give blood to hospitals don't pay for it actually.
The places that pay for it use it for research purposes.
I don't really consider this "PC" it's a legitimate concern I have, and I'm the farthest thing there is from PC.
Posted by: tsrblke at June 15, 2013 08:59 AM (GaqMa)
When you become ill enough to need a transplant, your doctor will make an initial determination on whether you would be a good candidate. Age, general health, and lifestyle all come into play. He then refers you to a transplant center. You are contacted and an initial assessment is made. During it, a number of tests are performed and you consult with a number of different doctors involved with the process. In my case, I underwent a large number of blood tests to be used to enter me into the registry, a nuclear stress test, and echocardiogram, and a sonogram of my old kidneys (to determine if there was room for a new kidney.) I consulted two different nephrologists, a surgeon, and a cardiologist. My case was then referred to the transplant committee (a panel of doctors) who determined if I was a good.
The committee reviewed my results and determined that they wanted me checked for brain aneurysms as the likelihood is increased due to my particular disease. Since thee was no evidence of one, I was deemed an excellent candidate (because my disease is genetic and cannot affect the new organ) and added to the list. Monthly after that, I underwent a Panel Reactive Antibody (PRA) test. This gives a rough estimate of the odds that there could be an immediate rejection in a transplant.
When an organ comes available, the hospital that harvests the organ conducts blood test and examines the organ for possible problems. In my case, they found a spot that concerned them, so they biopsied it. It was negative. (My hospital did the same thing to be sure.) They then pass those results to the regional registry. The registry generates a list of potential recipients. If there is one, the recipient hospital is notified and they notify the patient and potential backups. If there is not a close enough match, the organ is passed to the national registry if it can remain viable long enough. With kidneys, viability has been inreased somewhat because they can put them on a pump that circulates blood through them while the process is ongoing.
Potential recipients are given a blood test to use for a cross match to determine how hard their bodies might fight the new organ. The top person on this list gets first crack at the organ. If they fail the cross match, it moves down the list. In my case, I was #2 on the list.
As I said, kidneys are unique because of dialysis. Basically, blood type, body size and length of time on the list determine your spot. Other organs have criteria based on how sick the patient is. They get a score and the highest score that matches gets the organ. That's why this girl moved to the top.
Posted by: Zombie John Gotti at June 15, 2013 08:59 AM (1hekh)
Posted by: Ook? at June 15, 2013 08:59 AM (OQpzc)
Valid points, but a free market would operate side-by-side with an altruistic system. That has been demonstrated in this country with many things.
Yes, the poor would probably be disproportionately represented in the donor ranks, but would also be the recipients of a disproportionate number of charity organs, some of which would be purchased for them on the open market!
Posted by: CharlieBrown'sDildo at June 15, 2013 08:59 AM (WW8xK)
Thus the end to teen pregnancy.
You have to get support for abortion before you statement makes any sense. So it's far from even being reasonable given the current makeup of this country. Posted by: tsrblke
-----------------
You do understand that *both* parents most carry the CF gene for their child to have CF, and that the gene can be detected by a blood test. How that conflates to abortion, I do not understand.
Posted by: Mike Hammer at June 15, 2013 09:00 AM (aDwsi)
Isn't there a rocking chair and a bottle of bourbon on the porch?
Posted by: CharlieBrown'sDildo at June 15, 2013 09:01 AM (WW8xK)
----------------
Now you're just being petulant. Go with my plan..., i.e., compost the body and spread it on the tomato plants.
Posted by: Mike Hammer at June 15, 2013 09:02 AM (aDwsi)
Posted by: rickl at June 15, 2013 09:02 AM (sdi6R)
Posted by: Mike Hammer at June 15, 2013 01:00 PM (aDwsi)
Really?
OK I forsee 3 basic options.
either a) I can't marry a person with CF if I have CF, EVER.
or
b) we could never have kids of our own (keeping in mind it's a 1/4 chance, not a 4/4 chance, I could see people willing to roll the dice)
or
c) selective termination (abortion.)
Unless you're going to make the claim that invitro and PGD aren't actually abortion. But you'd have to defend that claim, and frankly I think it rests on pretty shaky ground.
See how I got there or do I need to draw you a better chart. There are effectively only 2 ways to control eugenics: On the front end (selective breeding) and on the back end (abortion.)
Posted by: tsrblke at June 15, 2013 09:04 AM (GaqMa)
The free market works fine for food. Posted by: rickl
-------------------------
We're working on that.
Posted by: Democratic Socialists at June 15, 2013 09:04 AM (aDwsi)
We need OrganHarmony.com.
I have the lung you need, and you have the money I need. We agree on a price, you put the money in trust with OrganHarmony and we meet up in China or India where they will be happy to do this thing.
Posted by: Ook? at June 15, 2013 09:04 AM (OQpzc)
265 -
Oddly enough too, farmers are more likely to plant the plants that result in foods when you pay them to do it. Which tends to mean, crazy as it sounds, more food for everybody!
Posted by: BurtTC at June 15, 2013 09:05 AM (TOk1P)
Posted by: CharlieBrown'sDildo at June 15, 2013 01:01 PM (WW8xK)
Did that yesterday
Posted by: Vic at June 15, 2013 09:05 AM (lZvxr)
The market for those needing organ transplants is so tiny compared to what the potential donation population would be if you offered to either cover burial expenses or cut a $6000 check to the family and cremate, it would be hard to maintain that level of payment.
Organs are only valuable now because of a misplaced moral code.
Posted by: jwest at June 15, 2013 09:06 AM (u2a4R)
Posted by: tsrblke at June 15, 2013 01:04 PM (GaqMa)
Isn't that the essence of eugenics, except that if you get really progressive, you extend the "abortion option" to very late post-delivery abortion (aka selective euthanasia)?
Posted by: Hrothgar at June 15, 2013 09:07 AM (Cnqmv)
Posted by: Mike Hammer at June 15, 2013 01:02 PM (aDwsi)
If elected in 2016, that is my plan for liberals.
Posted by: Ook? at June 15, 2013 09:07 AM (OQpzc)
Posted by: jwest at June 15, 2013 01:06 PM (u2a4R)
Wow. You really are as stupid as you seem.
Amazing.
Posted by: Margaret Sanger at June 15, 2013 09:07 AM (WW8xK)
>> I wonder if the Murnaghans will have anything to say to the family of the next wait-list fatality.
This contradicts mightily with your earlier statements: "I completely understand Janet and Francis Murnaghan's campaign to get their daughter, Sarah, a lung transplant at any cost. They are parents. Their primary function is the continued existence of their daughter, and I doubt many parents in their situation and with their means would do less."
Without weighing in on the fairness of a *system* that adjusted to accommodate these circumstances, I observe only that you are not thinking your argument through for internal consistency. Why should the parents second-guess what they did, if any parent would do the same, and this is the "primary function" of the parent? And if other parents don't similarly scrap, then why should the Murnaghans feel bad that they did?
The premise of your argument is one must die for one to live. Assuming that is true--the girl literally took the lungs out of another eligible person's chest--there is no way of avoiding that. (If the girl had lost, should the person who received the lungs feel guilty then?) You can argue this was not the most fair or the most efficient allocation of organ resources, but you cannot fault the Murnaghans for working the refs (at least not when you say it's the obligation of parents to do so).
This is akin to saying an attorney is both responsible to represent his client the best he can but should also then not be able to sleep at night for winning the lawsuit. (And in this case his client is a dying little girl.)
Posted by: Nicholas Kronos at June 15, 2013 09:08 AM (/Tujl)
Better to probably find ways to increase general donorship. (Also, I don't think we're too long from growing kidneys. Those will be the first organ rendered moot I think.)
Posted by: tsrblke at June 15, 2013 12:53 PM (GaqMa)
There are already artificial kidneys that are intended to be implanted that show a lot of promise for the future. There has also been some initial success in growing kidneys for rats from stem cells.
Speaking of stem cells, there is a promising research project that could lead to transplants no longer requiring anti-rejection drugs. In it, they give the recipient what amounts to a massive dose of chemotherapy. It effectively destroys the immune system They then transplant the donor organ along with stem cells from the donor and start the patient on the normal meds. As the immune system reconstitutes itself, it become a dual system. It can recognize both types of tissue as being perfectly OK to be in the body. Of the 8 initial patients, 5 had their organs after a year (1 other had died of causes that had nothing to do with the test.) They are currently expanding the test to a larger pool.
Posted by: Zombie John Gotti at June 15, 2013 09:09 AM (1hekh)
a) Marry whom you please
b) If you decide to have kids (the 25% option, if CF carriers), that is your choice, but you should not expect the rest of us to roll the dice with you, i.e., pay medical costs.
c) Abortion must be left to you..., it is not a decision for anyone else to make.
Posted by: Mike Hammer at June 15, 2013 09:09 AM (aDwsi)
Amazing.
Posted by: Margaret Sanger at June 15, 2013 01:07 PM (WW8xK)
If you can't understand it, sport, just ask questions. No reason to embarass yourself.
Posted by: jwest at June 15, 2013 09:11 AM (u2a4R)
Posted by: Ook
--------------------
My tiller stands ready for marching orders.
Posted by: Mike Hammer at June 15, 2013 09:11 AM (aDwsi)
Posted by: Tami[/i][/b][/u][/s] at June 15, 2013 09:12 AM (X6akg)
My problem with this situation is that it seems not that someone was jumped ahead in line, but rather was denied a place in line because the bureaucracy failed to keep up with the medical state of the art. We have a child who's doctor said that the the transplant would work based on medical science and a bureaucrat who said it wouldn't based on a 2005 policy. In short, a bureaucrat is telling a doctor how to practice medicene.
When I heard about this, the last thing I thought of was line jumpiing and instead saw it as a preview into the future of Obamacare. You want an example of a "death panel"? Well here it is and if you think that this will not explode under Obamacare, I have oceanfront property in Fargo ND to sell you.
Posted by: Thresherman at June 15, 2013 09:13 AM (Vbcjo)
Posted by: rickl at June 15, 2013 01:02 PM (sdi6R)
Again, get back to me with this plan when you need an organ.
Posted by: Zombie John Gotti at June 15, 2013 09:13 AM (1hekh)
Posted by: phoenixgirl....in Maui phoenixgirl@phxazgrl at June 15, 2013 09:15 AM (Esx8P)
Posted by: Zombie John Gotti at June 15, 2013 09:15 AM (1hekh)
Posted by: phoenixgirl....in Maui phoenixgirl@phxazgrl at June 15, 2013 09:17 AM (Esx8P)
Posted by: Zombie John Gotti at June 15, 2013 01:09 PM (1hekh)
They've been doing variants on these tests for years. It'd be great if they worked, but I don't hold out much hope for them.
Total bone marrow irradiation is not a pleasant procedure, and stacking it with another high risk procedure (organ transplantation) on top of the disease the person already has, and you get a mess.
Larger scale trials usually end up being a wash.
Even in non-organ transplant cases where complete bone marrow irradiation is likely helpful (i.e. leukemia) they usually hold off on that until the other options have been exhausted.
Posted by: tsrblke at June 15, 2013 09:19 AM (GaqMa)
@ZJG,
Yeah, while the HHS control of UNOS needs to be severed for a variety of reasons, it's never been an issue before now. I think making this the "Obama care hill to die on" is a bad move.
However, on the flip side I don't want judges overruling doctors either.
Posted by: tsrblke at June 15, 2013 09:21 AM (GaqMa)
Posted by: Deety at June 15, 2013 09:22 AM (Y4Lwq)
Posted by: krakatoa at June 15, 2013 09:23 AM (eCtnP)
Posted by: krakatoa at June 15, 2013 01:23 PM (eCtnP)
Krakatoa,
two things.
1) It's highly unlikely this is directed donation, so I'd cut that out of the post.
2) I do think (and perhaps hope) that if this becomes the new way tweak the system that the system will adjust to ensure the organs go where they have the greatest chance of long term success.
To that end, as I said, I expect we'll start seeing sizing become a criteria for recipients. As I understand it this was previously handled via the age restriction, which while kludge-like, served it's purpose. Hopefully something new will emerge.
I'm not saying I didn't want the girl to get an organ, I'm saying I wanted the organ to go the place where it has the least likely chance of failing.
Posted by: tsrblke at June 15, 2013 09:28 AM (GaqMa)
Posted by: rickl at June 15, 2013 09:29 AM (sdi6R)
Posted by: A Big Old Fat Guy at June 15, 2013 09:31 AM (CNua6)
Posted by: tsrblke at June 15, 2013 01:21 PM (GaqMa)
I agree about the judges. This had everything to do it being a kid. I loved to point out that the disease I have is Polycystic Kidney Disease (PKD). PKD is the #1 life-threatening genetic disease. There are over 600,000 people with it. Most people have never heard of it. They have heard of CF, muscular dystrophy, Huntington's disease, sickle-cell anemia, Hemophilia, and Down Syndrome. There are more people with PKD than those diseases combined. People know about them because they all affect kids. You can trot a sick kid out and get sympathy. PKD cysts aren't normally large enough to be detected until the person is his 20s. There is a recessive form that affects kids, but it is not common. Every once is a while, there will be a piece about a kid that has PKD, but they rarely mention the disease, just referring to it as a kidney disease.
Posted by: Zombie John Gotti at June 15, 2013 09:32 AM (1hekh)
Posted by: krakatoa at June 15, 2013 09:33 AM (eCtnP)
But liberals are more concerned about fairness than they are saving lives.
Posted by: Jeepers at June 15, 2013 09:35 AM (XDRsa)
Posted by: rickl at June 15, 2013 09:35 AM (sdi6R)
Regardless of whether this donation was or wasn't directed, I think the point stands in that the door has been opened for more popularity contests to try to influence all participants, including donor families. Posted by: krakatoa at June 15, 2013 01:33 PM (eCtnP
Some of the confusion stems from the statement the parents made. It came across like it was a directed donation, but as tsr said, I think it was more a generic "Thank you for donating" statement.
Posted by: Zombie John Gotti at June 15, 2013 09:37 AM (1hekh)
We don't really cut posts here... we stand on our mistakes with pride and Val-U-Rite, but mostly Val-U-Rite.
It's in there because either the article I linked, or another that I read, indicated that it may have been a directed donation. So it is an open question in my mind at least. I agree I could have written it more artfully, but hey, you get what you pay for on AoSHQ.
Regardless of whether this donation was or wasn't directed, I think the point stands in that the door has been opened for more popularity contests to try to influence all participants, including donor families.
Posted by: krakatoa at June 15, 2013 01:33 PM (eCtnP)
You can put a correction in about that it probably wasn't a directed donation. And the statement about popularity contests would still stand
Posted by: buzzion at June 15, 2013 09:38 AM (LI48c)
Posted by: krakatoa at June 15, 2013 09:40 AM (eCtnP)
Posted by: krakatoa at June 15, 2013 01:33 PM (eCtnP)
Your call not mine.
Fact is dead donors are very rarely directed donations (outside of the giant domino transplant types). It's just impossible to plan, you don't expect it, so you don't know who mataches.
And yes, the point remains, the popularity contest thing is not good.
Posted by: tsrblke at June 15, 2013 09:46 AM (GaqMa)
Posted by: tsrblke at June 15, 2013 01:46 PM (GaqMa)
And that adds to the argument against a free market system. There would be even more incentive to trot a sick child out and beg for donations. An adult might be able to raise $20,000 for an organ, but a kid could easily raise a cool mil.
Posted by: Zombie John Gotti at June 15, 2013 09:50 AM (1hekh)
Posted by: Cindy Munford at June 15, 2013 10:04 AM (6MiMG)
First, the transplant rules never disqualified Sarah. Instead, the Under 12 rule pushed her to the bottom of the list because she was under 12. Maybe the transplant rules made the Under 12 distinction for a good reason when the rule were made, but the court found the reasons were not justified now and, in fact, are discriminatory. By finding the Under 12 rule discriminatory, the Judge held there was no rational reason for the rule -- so apparently there was no convincing testimony from the medical community in support of the Under 12 rule.
Second, once the Under 12 rule was no longer in the picture, Sarah was relocated on the transplant list to the place where she would have been absent the rule. Since she was on a ventilator, her need was great and she probably was at the top of the list or very near it. Other factors, such as whether the donor's and Sarah's blood types matched, go into the final decision regarding whether Sarah got the lungs.
Posted by: DRJ at June 15, 2013 10:07 AM (iqHi+)
Someone else on the waiting list died to give this little girl a few more years (God willing). We cannot forget that fact.
Posted by: Adjoran at June 15, 2013 10:13 AM (473jB)
Posted by: DRJ at June 15, 2013 10:22 AM (iqHi+)
Posted by: DRJ at June 15, 2013 02:07 PM (iqHi+)
Partially true. He still hasn't held a full hearing and issued a ruling. He merely issued and 10-day TRO because he felt the evidence would show that the plaintiff would prevail. Now that OPTN has suspended the rule for a year, the case is somewhat mooted. It could still be argued and a ruling made in the event that OPTN lifts the suspension.
Posted by: Zombie John Gotti at June 15, 2013 10:39 AM (1hekh)
Posted by: tsrblke at June 15, 2013 01:04 PM (GaqMa)
In the case of a fetus determined to have two copies of the CF gene, and therefore doomed to live a short and miserable life, I can see early abortion as being the least-worst option.
Posted by: Alberta Oil Peon at June 15, 2013 10:44 AM (fNpC1)
Posted by: eman at June 15, 2013 10:59 AM (AO9UG)
Posted by: Deety at June 15, 2013 11:17 AM (Y4Lwq)
Continued improvements in therapies in this range could mean if not a cure, a maneagable condition with vastly healthier patients.
Posted by: SarahW at June 15, 2013 11:22 AM (LYwCh)
Posted by: Serena at June 15, 2013 11:29 AM (/2UXA)
Require DNA fingerprinting for donated organs and all organs need to be matched to an authorization paper with DNA sampling attached.
Any mismatched one and the seller of the organ gets life in prison, the buyer the same.
Posted by: doug at June 15, 2013 11:47 AM (uJ8q7)
Walter Williams has an interesting take on this, he thinks we should pay for organs and makes his case here:
Posted by: Aslan's Girl at June 15, 2013 12:10 PM (KL49F)
Posted by: pete pylant at June 15, 2013 12:20 PM (Hsm1n)
Posted by: Deety at June 15, 2013 12:39 PM (Y4Lwq)
Posted by: pete pylant at June 15, 2013 04:20 PM (Hsm1n)
I am B+ also. The average wait time at my transplant center for B+ is 5-6 years. I got lucky and got mine in just over 3. Political pressure won't work for you; you aren't a cute kid.
Posted by: Zombie John Gotti at June 15, 2013 12:39 PM (1hekh)
Posted by: Merovign, Dark Lord of the Sith's Other Mobile[/i][/b][/s][/u] at June 15, 2013 12:53 PM (qyfb5)
There is no way that person to person transplants is going to solve this problem. We have over the years wasted billions on embronic stem cell research and the global warming hoax for political reasons. Had we been directing that money into autostem cell development of organs we'd be a lot further along and could have possibly solved this problem years ago.
Posted by: rabidfox at June 15, 2013 03:23 PM (n0ZBF)
Too far down the list to matter. Too many comments to see if anyone made this point. the best of both worlds. Heh
The race to the bottom has begun. This case sets a most dangerous precedent (mind you, I am of the mind that people should be allowed to sell their organs to whomever they choose).
For a terrific example of the lowest common denominator system of spoils, you should read the story of the demise of The Twentieth Century Motor Ompany in Ayn Rands Atlas Shrugged.
When the most pathetic are the winners, you have successfully stood lawful society on it's head. Thanks a lot, Progs.
Posted by: Jeffersonian at June 16, 2013 05:10 PM (60WUU)
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Posted by: Rich at June 15, 2013 07:19 AM (aJGts)